Hello !
we are yet Cris & Jo, the two friends from  Venezia, Italy, that
searched help for Alice, the 9 years old child afflicted with familial
dysautonomia.
We want thanks all of you that numerous had answered to our request of
help, giving us informations and data useful and necessary…
We don’t want be pathetic, but we had never thought to find so many
willingness and solidarity and affection.
Moreover, we want thank you all from Alice’s parents, that are now in
a particulary difficult psychic situation.
We talked about few cases in the world because Alice has a particular
type of familial dysautonomia, that presents some symptoms of the
normal syndrome of F.D. but also other different symptoms. We
underline this fact because many people said us that F.D. is not so
rare as we think.
Thank you from the heart to you all !

                                                        Cris & Jo

Cris & Jo
E-Mail address: cri…@unive.it